We continue to celebrate Developmental Disabilities Awareness Month. Last week, we challenged you to bust myths about people with Down syndrome. This week, we’re sharing Medicaid waiver advice.
For people with disabilities, a Medicaid waiver is life-changing. Waivers help people get services they need to be independent. They can live in their communities. Many states have long wait lists. Applying and enrolling can be stressful. Families must sign up early. They must be ready for the steps ahead.
Get on the List Early
Some wait lists are years—or even decades—long. Families should apply as soon as possible, even if they do not need services right away. It is better to be on the list and wait than to need help and not have it. Each state has different ways to enroll. The Home and Community-Based Services page of the Medicaid website is a good place to start.
What Services Can a Waiver Provide?
Medicaid waivers include many services. They include:
- personal care
- job coaching
- respite care
- help with daily tasks like cooking or transportation
These services can make a huge difference. They support people to live on their own. They help people stay active in their communities.
Enrollment Can Be Stressful
Getting called off the waitlist is exciting. But the work is not over. Enrollment has many steps. There is lots of paperwork to do. There are many tests to take. You also have to find service providers. It can feel overwhelming.
Having a strong circle of support helps. This can include family members. It can also include trusted friends, coworkers, and others. Families and self-advocates also need strong self-advocacy skills. This will help them get the services they need.
Learn More and Get Support
Our Advocacy & Outreach Lead, James Meadours, got called off the wait list. He shared his advice about handling the stress of enrollment. Check out this clip.
Watch the full video on our YouTube channel. Also, check out our free self-advocacy courses.
Getting Medicaid waivers takes time. But it is worth it. Stay informed, get support, and never give up!